de4.0-bms provider logoChallenge completed

Health System 4.0 - The Voice of the Patient

#HealthSystem4.0 #PatientsVoice #FitPatientsNeeds

Patients in Germany benefit from one of the best health care systems in the world, but patients - insured - citizens remain outside when it comes to its design and further development. The involvement of Patients in health policy decisions is only selective. Create a digital platform to improve the health care system in Germany together with Bristol Myers Squibb, contributing not only to patient satisfaction but also to the creation of solution-oriented approaches in the midst of the Corona Pandemic.

Criteria & specifications

Criteria to be observed

What is needed are concepts for a digital platform to network all relevant stakeholders in health care with patients (including poorly organized patient groups and those affected individually) in such a way that direct, participatory and bidirectional exchange on decision-relevant topics is made possible. ​

The concepts should address the strategy and architecture of the platform (including target audience and possible content) and questions of technical implementation.

The networking of such a platform should be considered. By positioning it in a network of existing platforms and political participation offerings, the platform should be made attractive to a larger number of users and generate real added value.

The possible involvement and role of industrial partners (e.g. pharmaceutical companies, technology companies) should also be considered.

In addition, the relevant legal framework conditions, such as

  • Drug Advertising Act
  • Basic data protection regulation
  • Information duties and information rights (according to RStV)
Approaches that have already been pursued or are being excluded

The already existing offer of participation possibilities should be considered during the conception and the added value of the platform should be clear. Great importance is attached to an intelligent structure / architecture / (AI-supported?) moderation and interest aggregation, which is able to receive low-threshold input also from individual patients, but not to "drown" in a confusion of incoherent contributions. The platform has to find a balance so that patients can find their input again and at the same time visitors to the platform can quickly find meaningful (because aggregated / thematically well sorted) information. At the same time, (direct) interaction possibilities between politicians and patients should be considered.

The platform is not intended to copy the multitude of already existing, (indication-specific) exchange forums that are important for patients in their acute treatment situation. The platform is also not intended to serve the publication of individual cases / concrete situations and, if necessary, their scandalization (so-called hardship cases); rather, the goal should be to be informative for policy-making, and not a place for (medical) legal discussion of individual cases - although these can of course be addressed as examples to illustrate an underlying, (regulatory) grievance